Two years after she was diagnosed with Still-Person Syndrome, Celine Dion is opening up about living with the neurological disorder.
While speaking to Vogue France, Dion spoke about her health since the diagnosis. “I’m well, but it’s a lot of work. I’m taking it one day at a time.”
Although she hasn’t beaten the chronic disease, Celine Dion stated she hopes there will be a cure with scientific research. “But for now, I have learned to live with it. So that’s me, now with Stiff Person Syndrome.”
Dion then said through her treatment plan, she is undergoing athletic, physical, and vocal therapy five days a week. “I work on my toes, my knees, my calves, my fingers, my singing, my voice… I have to learn to live with it now and stop questioning myself.”
The famous singer admitted she had a lot of questions when she was first diagnosed. “Why me? How did this happen? What have I done? Is this my fault?”
Despite not having any answers for her condition, Celine Dion says she has two options. “Either I train like an athlete and work super hard, or I switch off and it’s over,” she explained.
“I stay home, listen to my songs, stand in front of my mirror, and sing to myself. I’ve chosen to work with all my body and soul, from head to toe, with a medical team.”
The I’m Alive hitmaker added she wants to be the best she can be. “My goal is to see the Eiffel Tower again!”
Celine further pointed out that she is being supported by her family and fans. She noted the support is what’s keeping her going. “I have this strength within me. I know that nothing is going to stop me.”
Celine Dion Reveals Whether or Not She’ll Tour Again
When asked if she is planning to get back on stage and tour again, Celine Dion admitted to not knowing how to answer that question.
“I can’t answer that…” she said. “Because for four years I’ve been saying to myself that I’m not going back, that I’m ready, that I’m not ready…”
Dion then said that she’s not quite what the future holds for her. “I can’t stand here and say to you, ‘Yes, in four months’ [I will return]. I don’t know… My body will tell me.”
However, she’s not ruling anything out. “On the other hand, I don’t just want to wait. It’s morally hard to live from day to day. It’s hard, I’m working very hard and tomorrow will be even harder. Tomorrow is another day.”
She noted there’s one that doesn’t stop, it’s the will.